Aligning guidelines and medical practice: Literature review on pediatric palliative care guidelines

Eva De Clercq1, Michael Rost1, Nadia Pacurari1

  • 1Institute for Biomedical Ethics,University of Basel,Basel,Switzerland.

Insights

Pediatric palliative care (PPC) implementation faces barriers like medical practice gaps and insufficient research. Recommendations include staff training, multidisciplinary teams, and enhanced awareness for timely referrals.

Area of Science:

  • Healthcare
  • Pediatrics
  • Palliative Care

Background:

  • Pediatric palliative care (PPC) is a growing healthcare subspecialty.
  • Concurrent curative and palliative care is recommended for children.
  • Timely referral to PPC services presents ongoing challenges.

Purpose of the Study:

  • Identify barriers to implementing pediatric palliative care.
  • Outline recommendations for effective PPC service delivery.
  • Analyze existing PPC guidelines and medical practice.

Main Methods:

  • Systematic literature search of five databases (Scopus, PubMed, PsycINFO, Web of Science, CINAHL) from 1960-2015.
  • No methodological restrictions were applied to the included studies.

Main Results:

  • Key barriers include gaps in medical practice and limited evidence-based research.
  • Recommendations focus on healthcare staff training, multidisciplinary team formation, PPC research, and awareness campaigns.
  • Some studies noted a lack of clear bereavement care guidance and challenges within multidisciplinary teams.

Conclusions:

  • Critical assessment of research guidelines and medical practice is essential.
  • Promoting timely implementation of PPC requires addressing identified barriers.
  • Enhancing PPC services necessitates improved guidance and team collaboration.
Abstract

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