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Red flags: a case series of clinician-family communication challenges in the context of CHD

Priya Sekar1, Katie L Marcus2, Erin P Williams3

  • 11Division of Pediatric Cardiology,Department of Pediatrics.Charlotte R. Bloomberg Children's Center,Johns Hopkins Hospital,Baltimore,Maryland,United States of America.

Cardiology in the Young
|January 17, 2017
PubMed

Insights

This study highlights communication challenges in newborns with complex congenital heart disease (CHD). Strategies are proposed to address patient, family, and system issues, aiming to improve care and quality of life for these infants.

Area of Science:

  • Pediatric Cardiology
  • Neonatal Care
  • Healthcare Communication

Background:

  • Complex congenital heart disease (CHD) presents significant challenges for newborns.
  • Effective communication is crucial for managing care in vulnerable infant populations.

Purpose of the Study:

  • To identify and categorize communication challenges in newborns with complex CHD.
  • To propose strategies for mitigating these challenges to optimize patient care and quality of life.

Main Methods:

  • Case series describing three newborns with complex CHD.
  • Categorization of communication challenges into patient, family, and system-related red flags.

Main Results:

  • Identified specific patient, family, and system-related communication red flags.
  • Developed targeted strategies to address each category of communication challenge.

Conclusions:

  • Addressing communication barriers is essential for improving outcomes in neonates with complex CHD.
  • Proposed strategies offer a framework for enhancing care quality and quality of life for affected infants and their families.

Keywords:
CHDCommunicationred flags

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