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Related Experiment Videos

[Dying at Life's Beginning].

F Frank1, F Maurer2, J Pehlke-Milde1

  • 1Zürcher Hochschule für Angewandte Wissenschaften, Gesundheit, Winterthur, Switzerland.

Gesundheitswesen (Bundesverband Der Arzte Des Offentlichen Gesundheitsdienstes (Germany))
|January 28, 2017
PubMed
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Parents facing a terminal prenatal diagnosis experience shock, dilemmas, and grief. Improved support for these families is crucial, regardless of their pregnancy decision, to address psychological needs.

Area of Science:

  • Perinatal Medicine
  • Psychology
  • Ethics

Background:

  • Terminal prenatal diagnoses present parents with profound ethical dilemmas and the inevitability of loss.
  • Perinatal child loss due to lethal fetal anomalies is a significant life event causing long-lasting psychological distress.
  • Supportive care tailored to bereaved parents' needs can alleviate suffering, irrespective of pregnancy continuation or termination.

Purpose of the Study:

  • To examine current counseling and support practices for families with terminal prenatal diagnoses.
  • To develop practical guidelines for healthcare and social professionals assisting these families.

Main Methods:

  • Qualitative study involving 32 parents in German-speaking Switzerland (December 2012 - March 2014).
  • Semi-structured, problem-centered interviews were conducted, transcribed verbatim, and thematically analyzed.

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Main Results:

  • Six key themes emerged from diagnosis to birth: shock, choices/dilemmas, responsibility, continued pregnancy, saying goodbye/letting go, and future planning.
  • Identified critical care gaps and discrepancies between parental experiences and healthcare professionals' perspectives.

Conclusions:

  • The study offers insights into parental responses to fatal prenatal diagnoses.
  • Findings advocate for a reevaluation of current midwifery, healthcare, and palliative care practices during pregnancy, birth, and postpartum periods.