Interprofessional spanning and building boundaries when supporting potential embryo donors to stem cell research

Area of Science:

• Reproductive Medicine
• Stem Cell Research Ethics
• Sociology of Science

Background:

• Fertility treatments often result in surplus embryos.
• Donating surplus embryos for stem cell research (SCR) offers an alternative to disposal.
• Potential embryo donors to SCR have unique support needs, distinct from fertility patients or gamete donors.

Purpose of the Study:

• To explore how lay and professional stakeholders conceptualize the support needs of potential embryo donors to SCR.
• To examine how professionals (embryologists, counsellors, scientists) have adapted their roles and expertise in response to embryo donation for SCR.
• To analyze the implications of this 'boundary-work' for the care provided to embryo donors.

Main Methods:

• Thematic analysis of 21 in-depth, semi-structured interviews.
• Inclusion of UK lay and professional stakeholders involved in fertility treatment and SCR.
• Application of Gieryn's concept of boundary-work to understand professional role adaptation.

Main Results:

• Identified unique support needs for individuals donating embryos to stem cell research.
• Demonstrated how professionals engaged in 'boundary-work,' adapting roles and knowledge bases.
• Highlighted the emergence of new professional responsibilities and expertise in managing embryo donation.

Conclusions:

• The emergence of embryo donation for SCR necessitates tailored support and clear communication for donors.
• Professional boundary-work influences the care and decision-making process for embryo donors.
• Findings inform current policy discussions aimed at improving donor care in the UK.