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Updated: Mar 8, 2026

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Information provision reduces parental anxiety.

Jane Chudleigh1

  • 1City, University of London.

Nursing Children and Young People
|February 7, 2017
PubMed
Summary

Delivering positive newborn screening results causes parental distress, primarily due to how information is provided during screening and result communication. Improving these processes is crucial for better parental experiences.

Area of Science:

  • Medical Genetics
  • Pediatric Health
  • Parental Well-being

Background:

  • Newborn screening aims to detect genetic disorders early.
  • Current information delivery methods can cause parental anxiety.
  • Positive results require sensitive communication strategies.

Purpose of the Study:

  • To investigate parental distress related to newborn screening results.
  • To identify specific communication challenges in delivering positive results.
  • To inform improvements in information provision for newborn screening.

Main Methods:

  • Qualitative analysis of parental experiences.
  • Review of existing literature on newborn screening communication.
  • Thematic analysis of reported information delivery issues.

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Main Results:

  • Parents report significant distress upon receiving positive newborn screening results.
  • Information provision at the time of screening contributes to distress.
  • Communication of results exacerbates parental anxiety.

Conclusions:

  • Current practices in information delivery and result communication for newborn screening require significant improvement.
  • Enhanced support and clearer information are needed to mitigate parental distress.
  • Optimizing the communication process can improve the overall experience for families undergoing newborn screening.