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Updated: Mar 7, 2026

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
The role of palliative care in critical congenital heart disease
Mjaye L Mazwi1, Natalia Henner2, Roxanne Kirsch3
1Pediatric and Cardiac Critical Care, Division of Cardiology, Ann and Robert Lurie Children's Hospital of Chicago, Northwestern Feinberg School of Medicine, Box 21, 225 E, Chicago Ave, Chicago, IL 60611.
Abstract:
Patients with critical congenital heart disease are exposed to significant lifetime morbidity and mortality. Prenatal diagnosis can provide opportunities for anticipatory co-management of patients between palliative subspecialists and the cardiac care team. The benefits of palliative care include support for longitudinal decision-making and avoidance of interventions not consistent with family goals. Effectively counseling families requires an up-to-date understanding of outcomes and knowledge of provider biases. Patient-proxy reported quality of life (QOL) is highly variable in this population and healthcare providers need to be aware of limitations in their own subjective assessment of QOL.
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