Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study

Claire Quinn1, Sandra McCarthy2, Mary Devins3

  • 1Lecturer, Programme Director, School of Nursing and Midwifery, NUI Galway.

Insights

This study identified key research priorities for children's palliative care in Ireland. Findings will guide evidence-based improvements for children with life-limiting conditions.

Area of Science:

  • Pediatrics
  • Palliative Care
  • Healthcare Research

Background:

  • Children's palliative care is a specialized field focused on enhancing quality of life for children with life-limiting conditions.
  • Support ideally begins at diagnosis, often from birth, and involves multiple agencies due to overlapping needs with complex care and disabilities.
  • Developing an evidence-based approach is crucial for this emerging specialty.

Purpose of the Study:

  • To systematically identify and establish research priorities in children's palliative care within Ireland.
  • To provide a foundation for future research endeavors in this specialized healthcare area.

Main Methods:

  • A Delphi Study methodology was employed.
  • Expert consensus was sought to determine research priorities.

Main Results:

  • The study successfully identified critical research priorities for children's palliative care in Ireland.
  • Key areas for future research were delineated through expert consensus.

Conclusions:

  • Establishing clear research priorities is essential for advancing children's palliative care in Ireland.
  • The findings will inform the development of a more robust, evidence-based framework for pediatric palliative care services.

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