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Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study
Claire Quinn1, Sandra McCarthy2, Mary Devins3
1Lecturer, Programme Director, School of Nursing and Midwifery, NUI Galway.
Insights
This study identified key research priorities for children's palliative care in Ireland. Findings will guide evidence-based improvements for children with life-limiting conditions.
Area of Science:
- Pediatrics
- Palliative Care
- Healthcare Research
Background:
- Children's palliative care is a specialized field focused on enhancing quality of life for children with life-limiting conditions.
- Support ideally begins at diagnosis, often from birth, and involves multiple agencies due to overlapping needs with complex care and disabilities.
- Developing an evidence-based approach is crucial for this emerging specialty.
Purpose of the Study:
- To systematically identify and establish research priorities in children's palliative care within Ireland.
- To provide a foundation for future research endeavors in this specialized healthcare area.
Main Methods:
- A Delphi Study methodology was employed.
- Expert consensus was sought to determine research priorities.
Main Results:
- The study successfully identified critical research priorities for children's palliative care in Ireland.
- Key areas for future research were delineated through expert consensus.
Conclusions:
- Establishing clear research priorities is essential for advancing children's palliative care in Ireland.
- The findings will inform the development of a more robust, evidence-based framework for pediatric palliative care services.
Abstract:
This paper reports the findings from a Delphi Study undertaken to identify the research priorities in children's palliative care in Ireland. Palliative care for children is a small and highly specialised field of healthcare that focuses on improving the quality of life of children living with, or dying from, a life-limiting condition. Ideally, support for children requiring palliative care begins at the time of diagnosis, which for many children with life-limiting conditions can be from birth. There is a notable overlap between the needs of children requiring palliative care and those with disabilities and other complex care needs, resulting in care being provided by a range of voluntary and statutory agencies. As a new specialty, there is a need to develop an evidence-based approach to providing children's palliative care. In order to do this in a systematic way, identification of the research priorities in children's palliative care within Ireland is required.
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