Applying the International Classification of Functioning-Children and Youth Version to Pediatric Neuro-oncology

Area of Science:

• Pediatric Neuro-oncology
• Rehabilitation Medicine
• Disability Studies

Background:

• Increased survival rates in pediatric central nervous system tumors highlight the need to address late effects.
• Neurologic sequelae, neuropsychological deficits, and social difficulties are significant concerns in follow-up care.
• Assessing cognitive impairments alone is insufficient for personalized treatment recommendations.

Purpose of the Study:

• To introduce the International Classification of Functioning-Children and Youth version (ICF-CY) as a framework for quantifying functional limitations.
• To inform long-term care strategies for pediatric neuro-oncology patients.
• To provide recommendations for clinical practice based on ICF-CY core sets.

Main Methods:

• Conceptual framework introduction: ICF-CY.
• Discussion of a standardized self-report and proxy-report questionnaire for participation measurement.
• Development of recommendations based on ICF-CY core sets for clinical practice.

Main Results:

• The ICF-CY provides a comprehensive approach to assessing functional limitations in pediatric brain tumor survivors.
• A standardized questionnaire aids in measuring participation in daily social activities.
• Core sets derived from the ICF-CY can guide clinical practice.

Conclusions:

• The ICF-CY framework is essential for a holistic assessment of pediatric brain tumor survivors.
• Quantifying functional deficiencies alongside cognitive impairments is crucial for personalized care.
• Implementing ICF-CY-based recommendations can improve long-term management and outcomes.