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Related Concept Videos

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Related Experiment Video

Updated: Mar 6, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Collaborating to develop an online resource for parents.

Trish Smith1, Veronica Swallow2, Marie Stephenson3

  • 1Royal Manchester Children's Hospital, Manchester.

Nursing Children and Young People
|March 7, 2017
PubMed
Summary
This summary is machine-generated.

A new web resource, Online Parent Information and Support (OPIS), was developed to aid parents in managing their child's chronic kidney disease (CKD) at home. This tool provides crucial support for home-based care of pediatric CKD.

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Area of Science:

  • Pediatric Nephrology
  • Health Informatics
  • Patient Support Systems

Background:

  • Chronic kidney disease (CKD) in children presents significant management challenges for families.
  • Home-based management is crucial for pediatric CKD patients.
  • Parents require accessible and reliable information and support for effective home care.

Purpose of the Study:

  • To develop and evaluate a web-based resource named Online Parent Information and Support (OPIS).
  • To provide targeted support for parents managing pediatric chronic kidney disease (CKD) at home.
  • To enhance the accessibility of information and support for pediatric CKD home management.

Main Methods:

  • Creation of a comprehensive web resource (OPIS).
  • Inclusion of information and support modules tailored for home-based pediatric CKD care.
  • Evaluation of the resource's usability and impact on parental support needs.

Main Results:

  • The development of the OPIS web resource was successfully completed.
  • The resource is designed to address the specific needs of parents managing pediatric CKD.
  • Initial findings indicate potential for OPIS to improve parental support in home-based CKD management.

Conclusions:

  • Online parent information and support (OPIS) is a viable tool for assisting families with pediatric chronic kidney disease (CKD).
  • Web-based resources can effectively bridge information and support gaps in home-based pediatric healthcare.
  • Further evaluation is warranted to confirm the long-term benefits of OPIS for pediatric CKD management.