Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study
A Costal Tirado1,2, A M McDermott3, C Thomas1
1Centre for Medical Education, School of Medicine, Cardiff University, Cardiff, UK.
Journal of Genetic Counseling
|March 11, 2017
Summary
Patient-reported outcome measures (PROMs) can improve healthcare quality. This study explored using PROMs in clinical genetics, identifying benefits like better patient insight and service evaluation.
Area of Science:
- Healthcare Quality Improvement
- Patient-Centered Care
- Clinical Genetics Services
Background:
- International advocacy promotes patient-centered healthcare delivery.
- Patient-reported outcome measures (PROMs) are key to evaluating healthcare from a patient perspective.
- Understanding the implementation processes for PROMs in healthcare settings remains limited.
Purpose of the Study:
- To explore the utilization of two different PROMs in clinical genetics services to support quality improvement.
- To identify challenges and benefits associated with implementing PROMs in a clinical genetics setting.
- To assess the utility of a genetic counseling-specific PROM (GCOS-24) and a generic PROM (EQ-5D).
Main Methods:
- An exploratory study involving the use of two PROMs: Genetic Counseling Outcome Scale (GCOS-24) and Euroqol (EQ-5D).
- A service audit tool based on patient-reported experience measures was also employed.
- Interviews with clinical staff were conducted to identify challenges and benefits of PROM implementation.
Main Results:
- PROMs provide valuable insights into patient needs and can complement clinical judgment.
- PROMs help identify met needs, evidence service benefits, and highlight areas for attention.
- Challenges in PROM use include response rates, data collection, and analysis, but benefits include professional development.
Conclusions:
- PROMs, including GCOS-24 and EQ-5D, can effectively support service quality improvement in clinical genetics.
- Successful implementation requires addressing challenges related to data management and staff engagement.
- Utilizing PROMs enhances patient-centered care by providing a direct patient perspective on healthcare outcomes and experiences.
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