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[Paediatric palliative care: multidisciplinary and pro-active]
G C B Bindels de Heus1, L M Ball, E M C Michiels
1Erasmus MC-Sophia Kinderziekenhuis, Rotterdam.
Insights
All children with serious illnesses deserve palliative care from diagnosis, focusing on physical, emotional, and spiritual needs. A multidisciplinary team approach is crucial for optimizing quality of life for both the child and family.
Area of Science:
- Pediatric medicine
- Palliative care research
Background:
- Children with life-limiting or threatening illnesses and their families have a right to palliative care.
- Palliative care should commence at diagnosis, irrespective of curative treatment availability.
Observation:
- Optimizing quality of life requires addressing somatic, psychosocial, and spiritual aspects of care.
- Goal setting should be a collaborative process involving the child and family.
Findings:
- A multidisciplinary and proactive approach is essential for effective pediatric palliative care.
- Integrating comprehensive care from the outset improves patient and family well-being.
Implications:
- Academic hospitals should establish multidisciplinary pediatric palliative care teams.
- Early and holistic palliative care is vital for improving outcomes in pediatric chronic and terminal illnesses.
Abstract:
Every child with a life-limiting or threatening illness, and his or her family, has a right to palliative care. Palliative care is not limited to end-of-life care, but starts from the moment of diagnosis and is independent of whether there are curative options. To optimise quality of life of both the child and the family, the emphasis of care should be on both somatic and psychosocial and spiritual aspects from the very start, and goals should be set together with the child and the family. A multidisciplinary and pro-active approach is essential if this is to be achieved. It is, therefore, strongly recommended that at least every academic hospital should have a multidisciplinary paediatric palliative care team.
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