Family Stigma Associated With Epilepsy: A Qualitative Study

Area of Science:

• Neurology
• Psychology
• Sociology

Background:

• Epilepsy significantly impacts patients and their families.
• Stigma associated with epilepsy presents a considerable burden.
• Understanding parental experiences is vital for effective support.

Purpose of the Study:

• To explore the lived experiences of parents caring for a child with epilepsy in Iran.
• To identify the challenges and impacts of epilepsy on families from the parents' perspective.

Main Methods:

• Interpretative phenomenological study.
• In-depth, semi-structured interviews with 10 parents of children with epilepsy.
• Data analysis using Van Manen's phenomenological method.

Main Results:

• Family stigma emerged as a central theme.
• Subthemes included verbal abuse, social withdrawal, and interference from associates.
• These experiences highlight the profound psychosocial challenges faced by parents.

Conclusions:

• Family stigma is a major challenge for parents of children with epilepsy.
• The healthcare system, particularly nurses, must provide focused attention and support.
• Interventions aimed at reducing stigma are essential for improving the quality of life for these families.