Prospective Pilot Study of the Mastering Each New Direction Psychosocial Family Systems Program for Pediatric Chronic

Brian Distelberg1, Daniel Tapanes2, Natacha D Emerson3

  • 1Loma Linda University Behavioral Medicine Center, Redlands, CA.

Family Process
|March 17, 2017
PubMed

Insights

The MEND program, a family systems intervention, significantly improved health-related quality of life for children with chronic illnesses. It positively impacted stress, cognitive function, mental health, and family functioning.

Area of Science:

  • Pediatric Psychology
  • Family Systems Theory
  • Health Services Research

Background:

  • Psychosocial interventions are crucial for managing pediatric chronic illness (CI).
  • Family systems approaches may enhance intervention effectiveness and sustainability.
  • Existing interventions may not fully address the complex needs of families with pediatric CI.

Purpose of the Study:

  • To evaluate the biopsychosocial benefits of a novel family systems psychosocial intervention, MEND (Mastering Each New Direction).
  • To assess the impact of the MEND program on multiple domains of health-related quality of life in families with pediatric CI.

Main Methods:

  • A single-arm study involving 45 families with pediatric CI participating in a 21-session intensive outpatient program.
  • Measurement of five domains: Stress, Cognitive Functioning, Mental Health, Child Health-Related Quality of Life (HRQL), and Family Functioning using self-report surveys.
  • Inclusion of biological measures, specifically catecholamines, to assess stress levels.

Main Results:

  • Positive pre-, post-, and 3-month post-intervention effects were observed across all five measured domains.
  • Program effects ranged from small to moderate (η² = .07–.64).
  • Cognitive functioning (η² = .64) and stress (η² = .27) demonstrated the largest program effects.

Conclusions:

  • The MEND program shows promise as an effective intervention for families managing pediatric chronic illnesses.
  • Results support the integration of family systems principles in psychosocial interventions for pediatric CI.
  • Further research and clinical practice should consider family systems-level interventions for improved outcomes.