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Creation of Patient-Specific Silicone Cardiac Models with Applications in Pre-surgical Plans and Hands-on Training

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Understanding Children's Heart Surgery Data: A Cross-Disciplinary Approach to Codevelop a Website.

Christina Pagel¹, Emily Jesper², Joanne Thomas²

¹Clinical Operational Research Unit, University College London, London, United Kingdom.

The Annals of Thoracic Surgery

|March 21, 2017

Summary

Interpreting children's heart surgery survival data is challenging. New online resources, co-developed with parents and experts, improve understanding of these vital statistics.

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Area of Science:

Medical Statistics
Health Communication
User Experience Design

Background:

Annual publication of risk-adjusted survival statistics for pediatric heart surgery in the UK presents interpretation challenges.
A need exists for improved resources to help various users understand complex survival data.

Purpose of the Study:

To describe the co-development of online resources for presenting pediatric heart surgery survival outcomes.
To highlight the impact of multidisciplinary collaboration and user involvement in resource design.

Main Methods:

A multidisciplinary team (mathematicians, psychologists, charity) collaborated with parents and users.
User involvement guided content, scope, and website design.
Formal psychology experiments informed deeper insights into user understanding.

Main Results:

An interactive website (http://childrensheartsurgery.info/) was launched in June 2016.
The website received positive reviews, indicating successful resource development.
User-centered design significantly shaped the final product.

Conclusions:

Co-developing online resources with end-users and experts enhances the interpretation of complex health statistics.
Multidisciplinary collaboration and user engagement are crucial for effective health communication tools.
The developed website serves as a valuable tool for understanding children's heart surgery outcomes.