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Towards a Community-Based Dementia Care Strategy: How Do We Get There from Here?
Frances Morton-Chang1, A Paul Williams2, Whitney Berta3
1Postdoctoral Fellow, Institute of Health Policy, Management and Evaluation University of Toronto, Toronto, ON.
Most people with dementia prefer to age at home. Community-based care and early intervention are crucial to prevent unnecessary long-term care (LTC) placement for persons living with dementia (PLWD).
Area of Science:
- Gerontology
- Public Health Policy
- Dementia Care Research
Background:
- Most older adults, including persons living with dementia (PLWD), prefer to age in place.
- Many PLWD transition to residential long-term care (LTC) or hospitalization, often due to a lack of community support.
- LTC is appropriate for advanced dementia but can be a costly, avoidable outcome for those needing community-based services.
Purpose of the Study:
- To explore the current state of community-based dementia care.
- To analyze dementia care policy in Ontario as a case study for systemic challenges.
- To identify strategies for a community-based dementia care model.
Main Methods:
- Literature review on the "state of the art" in community-based dementia care.
- Historical policy analysis of dementia care in Ontario.
- Application of a "balance of care" study framework in South West Ontario.
- Synthesis of national and international dementia care strategies.
Main Results:
- Early and ongoing intervention in community settings is vital for persons living with dementia (PLWD).
- Lack of accessible community care options often leads to premature or default placement in institutional settings.
- Policy shifts are needed from reactive, curative care to proactive, community-based prevention and maintenance.
Conclusions:
- A community-based dementia care strategy requires engaging PLWD in care decisions.
- Support for informal caregivers is essential for the success of formal care systems.
- Policies must enable "ground-up" change, ensuring early intervention and a continuum of care to promote independence closer to home.
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