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Developing educational material on chronic kidney disease using best practices in health literacy
Luanda Thaís Mendonça Santos1, Marcus Gomes Bastos1
1Universidade Federal de Juiz de Fora, Brazil.
Jornal Brasileiro De Nefrologia
|March 30, 2017
Summary
An educational booklet on chronic kidney disease (CKD) was developed using health literacy principles. This booklet aided in creating a Brazilian health literacy assessment tool, TALES, improving patient understanding of CKD.
Area of Science:
- Health Literacy
- Nephrology
- Educational Material Development
Background:
- Health Literacy (HL) is crucial for patient understanding of complex health information.
- Chronic Kidney Disease (CKD) presents significant challenges in patient comprehension and management.
- Existing educational materials may not effectively translate complex medical concepts for patient understanding.
Purpose of the Study:
- To develop an educational booklet on Chronic Kidney Disease (CKD) grounded in Health Literacy (HL) principles.
- To utilize the booklet as foundational material for creating a Brazilian instrument for Health Literacy Assessment (TALES).
- To evaluate the booklet's effectiveness in simplifying complex CKD information for patients.
Main Methods:
- Systematization of CKD content covering definition, diagnosis, signs, symptoms, prevention, risk factors, and treatment.
- Application of multimodality techniques including personages, metaphors, metonymy, personification, dialogue, and plain language.
- Involvement of expert designers, nephrology, and linguistics committees for content refinement.
- Iterative editing and printing processes for the educational booklet and TALES instrument.
Main Results:
- The booklet successfully translated complex scientific concepts of kidney disease into accessible health messages.
- Multimodality techniques enhanced the clarity and engagement of the educational material.
- The booklet proved instrumental in the development and validation of the TALES assessment tool.
- The developed materials demonstrated potential for improving patient-provider communication regarding CKD.
Conclusions:
- The "Do you know Chronic Kidney Disease?" booklet, based on HL best practices, serves as a valuable educational resource.
- The booklet facilitated the creation of the TALES instrument for assessing health literacy in Brazil.
- Consumer-friendly educational materials like this booklet can empower patients, potentially improving health behaviors and outcomes related to CKD.