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Stakeholders' Perceptions of Care Coordination: A Participatory Process
Summary
Community input identified five key areas for improving care coordination for children with special health care needs. These essential elements form the foundation for a better system.
Area of Science:
- Pediatric Healthcare
- Health Services Research
- Community Engagement
Background:
- Children with special health care needs (CSHCN) often face unmet health needs.
- Effective care coordination is vital for this population.
- Existing systems may have gaps in service delivery.
Purpose of the Study:
- To identify essential elements for a system-wide care coordination model for CSHCN.
- To utilize a community-engaged research strategy to gather stakeholder input.
Main Methods:
- A qualitative descriptive study was conducted.
- Anonymous feedback was collected from 104 stakeholders in Arizona.
- Inductive content analysis was used to analyze the data.
Main Results:
- Five crucial categories emerged: Communication, Insurance, Health Care Capacity, Provider Knowledge, and Family Education.
- These categories represent key strengths and areas for improvement in current care coordination.
- Stakeholder input highlighted the importance of these elements for seamless care.
Conclusions:
- The identified elements provide a foundation for developing a statewide pediatric care coordination model.
- Community stakeholder involvement is essential for building effective care coordination systems.
- Addressing these five areas can improve care delivery for CSHCN.