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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

Stakeholders' Perceptions of Care Coordination: A Participatory Process

Annmarie A Lyles, Penny Morgan Overgaard, Grace L Caputo

    Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners
    |April 17, 2017
    PubMed

    Insights

    Community input identified five key areas for improving care coordination for children with special health care needs. These essential elements form the foundation for a better system.

    Area of Science:

    • Pediatric Healthcare
    • Health Services Research
    • Community Engagement

    Background:

    • Children with special health care needs (CSHCN) often face unmet health needs.
    • Effective care coordination is vital for this population.
    • Existing systems may have gaps in service delivery.

    Purpose of the Study:

    • To identify essential elements for a system-wide care coordination model for CSHCN.
    • To utilize a community-engaged research strategy to gather stakeholder input.

    Main Methods:

    • A qualitative descriptive study was conducted.
    • Anonymous feedback was collected from 104 stakeholders in Arizona.
    • Inductive content analysis was used to analyze the data.

    Main Results:

    • Five crucial categories emerged: Communication, Insurance, Health Care Capacity, Provider Knowledge, and Family Education.
    • These categories represent key strengths and areas for improvement in current care coordination.
    • Stakeholder input highlighted the importance of these elements for seamless care.

    Conclusions:

    • The identified elements provide a foundation for developing a statewide pediatric care coordination model.
    • Community stakeholder involvement is essential for building effective care coordination systems.
    • Addressing these five areas can improve care delivery for CSHCN.
    Abstract

    Keywords:
    Childrencommunity engagementspecial health care needs

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