Security Policy and Infrastructure in the Context of a Multi-Centeric Information System Dedicated to Autism Spectrum

Mohamed Ben Said1, Laurence Robel2, Bernard Golse2

  • 1Paris Descartes University, Faculty of Medicine, Department of Biostatistics and Medical Informatics, APHP - Necker Enfants Malades Hospital, Paris, France.

Insights

A new information system, TEDIS, securely manages autism spectrum disorder (ASD) patient data. This system ensures patient privacy and data integrity, ready for wider clinical use.

Area of Science:

  • Neuroscience
  • Clinical Informatics
  • Public Health

Background:

  • Autism spectrum disorders (ASD) are complex neuro-developmental conditions requiring multidisciplinary diagnostic approaches.
  • Effective management of patient data is crucial for supporting clinicians, researchers, and public health decision-makers in ASD care.
  • Existing systems may not adequately address the need for secure, systematic, and continuous multi-center data collection for ASD.

Purpose of the Study:

  • To design and present the security policy and infrastructure for TEDIS, an information system for Autism Spectrum Disorders (ASD).
  • To ensure the protection of sensitive patient clinical data and privacy within the TEDIS system.
  • To validate the functionality and security of the TEDIS system for ASD patient records.

Main Methods:

  • Development of a secure information system (TEDIS) for multi-center ASD patient data collection via secured internet connections.
  • Implementation of a comprehensive security policy and infrastructure to safeguard patient data and privacy.
  • Testing the system on 359 ASD patient records within a secured intranet environment.

Main Results:

  • The TEDIS information system demonstrated functional security, protecting ASD patient data and privacy.
  • The system exhibited consistent, transparent, and safe encrypting-decrypting behavior during testing.
  • The security infrastructure is validated and prepared for deployment in ASD expert centers.

Conclusions:

  • The TEDIS information system provides a secure and reliable platform for managing ASD patient data.
  • The implemented security measures effectively protect patient confidentiality and data integrity.
  • TEDIS is ready for deployment, enhancing data management capabilities for ASD assessment centers.

Related Concept Videos

Autism Spectrum Disorder01:19

Autism Spectrum Disorder

Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
1.4K
Nursing Clinical Information System01:27

Nursing Clinical Information System

Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
1.3K
Ethical Standards I01:25

Ethical Standards I

The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
1.6K
Specialized Care Centers and Settings-I01:30

Specialized Care Centers and Settings-I

Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
1.5K
Modeling in Therapy01:26

Modeling in Therapy

Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
615
Health Information Technology and Healthcare Information System01:30

Health Information Technology and Healthcare Information System

Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
3.5K