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Scoping review to develop common data elements for lumbar spinal stenosis.

Allen Heinemann1, Jason Raad2, Venu Akuthota3

  • 1Northwestern University Feinberg School of Medicine, 303 E Chicago Ave, Chicago, IL 60611, USA; Rehabilitation Institute of Chicago, 345 E Superior St, Chicago, IL 60611, USA.

The Spine Journal : Official Journal of the North American Spine Society
|April 25, 2017
PubMed
Summary
This summary is machine-generated.

This study identified key common data elements (CDEs) for lumbar spinal stenosis (LSS) using expert consensus and the ICF framework. These CDEs will improve research and clinical care for LSS patients.

Keywords:
Clinical assessmentCommon data elementInternational Classification of Functioning, Disability and HealthLower back painLumbar spinal stenosisOutcome measure

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Area of Science:

  • Neurosurgery
  • Rehabilitation Medicine
  • Health Outcomes Research

Background:

  • Common data elements (CDEs) are crucial for standardizing health outcome assessment.
  • CDEs for lumbar spinal stenosis (LSS) have been underdeveloped.
  • This study addresses the need for standardized LSS assessment tools.

Purpose of the Study:

  • To define CDEs for LSS disease characteristics and outcomes.
  • To utilize the World Health Organization's International Classification of Functioning, Disability and Health (ICF) taxonomy.
  • To facilitate the selection of appropriate assessment instruments for LSS research and clinical practice.

Main Methods:

  • A scoping review was conducted using a modified Delphi approach.
  • A technical expert panel of 31 subject matter experts (SMEs) in LSS was assembled.
  • SMEs prioritized ICF codes and evaluated assessment instruments for LSS symptoms and functional impact.

Main Results:

  • Fifty-three ICF codes were prioritized by SMEs, with high endorsement for domains including pain, activities, participation, and emotional well-being.
  • Of 58 identified instruments, 24 were retained after content analysis.
  • The retained instruments adequately cover the ICF's activities and participation, and body function domains.

Conclusions:

  • The identified CDEs and measures provide a foundation for standardized LSS assessment.
  • These CDEs can guide clinical decision-making and improve comparative effectiveness research for LSS interventions.
  • Further development is needed to ensure comprehensive assessment of body structure and environmental factors in LSS.