Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Issues And Trends In Healthcare Delivery System01:29

Issues And Trends In Healthcare Delivery System

6.3K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
6.3K
Social Foundations of Self IV: Self in Digital Communication01:30

Social Foundations of Self IV: Self in Digital Communication

227
Since the early 2000s, computer-mediated communication (CMC) has grown rapidly, playing a crucial role in self-development. A key distinction between CMC and real-life interactions is the lack of a physically present partner. This absence makes non-verbal cues such as facial expressions, body language, and paralinguistic signals unavailable in CMC platforms like email, instant messaging, or social media. The lack of these cues can create ambiguity and complicate how feedback is interpreted.The...
227
Health Information Technology and Healthcare Information System01:30

Health Information Technology and Healthcare Information System

3.5K
Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
3.5K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Effects of Edible Insect Enrichment of Meat-Based and Meat Analogue Products on the Nutritional Composition, Techno-Functional Properties, and Acceptability to Consumers: A Systematic Review.

Foods (Basel, Switzerland)·2026
Same author

Genetic biomarkers of clinical manifestations in giant cell arteritis define distinct patient subgroups.

Annals of the rheumatic diseases·2026
Same author

The way we do things matters: the deep integration of lived experience in the a/part of the crowd project to respond to loneliness in young adults.

Research involvement and engagement·2026
Same author

Osteoporosis and osteoporosis therapies as determinants of implant fixation failure in arthroplasty and spinal fusion constructs: a position statement from the Fracture Working Group of the Council of Scientific Advisors of the International Osteoporosis Foundation.

Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA·2026
Same author

A Phase I trial of the anti-IL23 monoclonal antibody tildrakizumab, in combination with abiraterone acetate, for the treatment of metastatic castration-resistant prostate cancer.

Investigational new drugs·2026
Same author

Effective Performance of the 2022 American College of Rheumatology/EULAR Classification Criteria for Antineutrophil Cytoplasmic Antibody-Associated Vasculitis in Pediatric Patients: An ARChiVe Study.

Arthritis & rheumatology (Hoboken, N.J.)·2026

Related Experiment Video

Updated: Mar 3, 2026

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
11:21

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

Published on: July 27, 2018

8.9K

The RUDY study: using digital technologies to enable a research partnership.

Harriet J A Teare1, Joanna Hogg2, Jane Kaye1

  • 1HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.

European Journal of Human Genetics : EJHG
|April 27, 2017
PubMed
Summary

Patient involvement in research accelerates innovation. The RUDY study demonstrates how digital platforms and dynamic consent empower patients as active partners, improving rare disease research and efficiency.

Related Experiment Videos

Last Updated: Mar 3, 2026

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
11:21

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

Published on: July 27, 2018

8.9K

Area of Science:

  • Medical research methodology
  • Patient engagement in science
  • Rare disease research

Background:

  • Patient expertise is often underutilized in research design and execution.
  • The research community has been slow to integrate patients as active partners.
  • Digital technologies offer new avenues for patient involvement in research.

Purpose of the Study:

  • To describe the pioneering approach of the RUDY (Rare UK Diseases of bone, joints and blood vessels) study.
  • To highlight the benefits of a patient-partnership model in rare disease research.
  • To showcase the use of digital platforms and dynamic consent in research.

Main Methods:

  • Development of a custom electronic platform for patients to contribute longitudinal disease experience data.
  • Implementation of a state-of-the-art Dynamic Consent model.
  • Commitment to patient-driven research principles.

Main Results:

  • Patients actively contribute extensive disease experience, lifestyle, and clinical history data.
  • The partnership approach enhances research innovation and efficiency.
  • The study facilitates a deeper understanding of rare diseases through patient collaboration.

Conclusions:

  • Integrating patients as active partners significantly benefits research design and execution.
  • Digital platforms and dynamic consent are key enablers for patient-involved research.
  • The RUDY study model offers a valuable framework for advancing rare disease research.