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The Evolution of a Pediatric Ventricular Assist Device Program: The Boston Children's Hospital Experience
Beth Hawkins1, Francis Fynn-Thompson2, Kevin P Daly3,4
1Department of Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA. beth.hawkins@cardio.chboston.org.
Insights
Developing a pediatric ventricular assist device (VAD) program requires a dedicated interdisciplinary team and robust infrastructure. This paper shares Boston Children's Hospital's decade of experience, offering crucial lessons for managing complex pediatric VAD patients.
Area of Science:
- Pediatric cardiology
- Mechanical circulatory support
- Biomedical engineering
Background:
- Ventricular assist devices (VADs) for pediatric patients have seen significant advancements.
- Outpatient VAD support is expanding, often outpacing program preparedness.
- Managing pediatric VADs presents unique clinical, programmatic, and administrative challenges.
Purpose of the Study:
- To describe the Boston Children's Hospital's decade-long experience with pediatric VADs.
- To share lessons learned in developing a specialized pediatric VAD program.
- To highlight key components for successful pediatric VAD care.
Main Methods:
- Retrospective review of a decade of VAD program data at Boston Children's Hospital.
- Focus on a high-risk, low-volume pediatric patient population.
- Analysis of clinical, programmatic, and administrative aspects of VAD care.
Main Results:
- Successful implementation and growth of a pediatric VAD program over 10 years.
- Identification of critical success factors including a dedicated VAD coordinator and strong clinical infrastructure.
- Demonstration of innovative inpatient and outpatient VAD support strategies.
Conclusions:
- A comprehensive, interdisciplinary VAD program is essential for safe and effective pediatric VAD support.
- The VAD coordinator role is paramount in managing complex pediatric patients.
- Continuous innovation in care delivery is vital for pediatric VAD programs.
Abstract:
Mechanical circulatory support in the form of ventricular assist devices (VADs) in children has undergone rapid growth in the last decade. With expansion of device options available for larger children and adolescents, the field of outpatient VAD support has flourished, with many programs unprepared for the clinical, programmatic, and administrative responsibilities. From preimplantation VAD evaluation and patient education to postimplant VAD management, the VAD program, staffed with an interdisciplinary team, is essential to providing safe, effective, and sustainable care for a new technology in an exceedingly complex patient population. Herein, this paper describes the Boston Children's Hospital VAD experience over a decade and important lessons learned from developing a pediatric program focusing on a high-risk but low-volume population. We highlight the paramount role of the VAD coordinator, clinical infrastructure requirements, as well as innovation in care spanning inpatient and outpatient VAD supports at Boston Children's Hospital.
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