Perioperative experience of parents whose children undergo cardiac surgery: are we delivering?

Area of Science:

• Pediatric cardiology
• Family-centered care
• Healthcare systems

Background:

• Pediatric heart surgery presents significant emotional and logistical challenges for families.
• The National Health Service (NHS) recognizes the importance of addressing these family experiences.
• Congenital Heart Disease Review Standards highlight the need for family-inclusive care pathways.

Purpose of the Study:

• To explore the multifaceted experiences of families with children undergoing heart surgery.
• To identify key stressors and support needs within the family unit.
• To inform improvements in healthcare provision for pediatric cardiac patients and their families.

Main Methods:

• Qualitative research methods, including interviews and thematic analysis.
• Longitudinal study design to capture evolving family experiences.
• Engagement with healthcare professionals involved in pediatric cardiac care.

Main Results:

• Families report high levels of anxiety, fear, and uncertainty throughout the surgical journey.
• Significant financial and logistical burdens impact family well-being.
• The need for enhanced communication, emotional support, and practical assistance is consistently reported.

Conclusions:

• Addressing the complex needs of families is crucial for optimal outcomes in pediatric heart surgery.
• Integrated family support services should be a core component of congenital heart disease care.
• Healthcare providers must adopt a holistic, family-centered approach to care delivery.