Developing a training package

Area of Science:

• Health Services Research
• Patient and Public Involvement in Research

Background:

• A need for tailored research training for service users and carers in the National Health Service (NHS) was identified.
• Existing training lacked specific focus on the unique needs and experiences of service users and carers.

Purpose of the Study:

• To outline the development of a training package for service users and carers interested in NHS health and social care research.
• To demonstrate how lived experience of service users and carers informed the training package development.
• To share lessons learned from the co-production process and subsequent challenges.

Main Methods:

• A working group of service users, carers, and NHS Research and Development Forum members, with professional support, identified training needs.
• Existing training was reviewed, and the group drew upon their experience to develop a bespoke training package.
• Pilot sessions of the training package were conducted and evaluated.

Main Results:

• A sustainable co-production model and strong working relationships were established within the development group.
• Pilot training sessions received positive evaluations.
• Challenges were encountered in achieving programme accreditation and wider roll-out due to external factors and financial constraints.

Conclusions:

• Co-production models can be effective and sustainable for developing research training for service users and carers.
• Tailored training, quality, and consistency are crucial for effective service user and carer research education.
• Recognizing and proactively addressing challenges, including financial and external factors, is essential for project success and wider implementation.