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Pediatric Palliative Care: A Five-Year Retrospective Chart Review Study.
Susan E Thrane1, Scott H Maurer2, Susan M Cohen3
11 College of Nursing, The Ohio State University , Columbus, Ohio.
This study found that while survival for seriously ill children in palliative care varied by diagnosis, particularly cancer, pain significantly decreased after referral. This highlights the need for early palliative care for complex pediatric illnesses.
Area of Science:
- Pediatric Palliative Care
- Complex Pediatric Illnesses
- Childhood Survival Rates
Background:
- Increasing prevalence of serious illnesses in children.
- Limited data on survival and illness complexity in pediatric palliative care.
Purpose of the Study:
- Describe illness types, referral timing, and survival in pediatric palliative care.
- Examine demographic and clinical factors influencing survival.
- Assess pain reduction post-referral.
Main Methods:
- Retrospective chart review of 256 children (ages 2-16) referred to palliative care.
- Kaplan-Meier and Cox regression for survival analysis.
- Paired t-test for pain assessment before and after referral.
Main Results:
- Survival did not differ by gender, age, race, or religion (p≥0.05).
- Survival varied significantly by referring diagnosis (p<0.001), especially for cancer.
- Pain significantly decreased post-referral (p<0.05).
Conclusions:
- Palliative care referral timing appears earlier for most children.
- Congenital and genetic diagnoses represent significant medical complexity.
- Palliative care effectively reduces pain in seriously ill children.
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