Pediatric Nurses' Perception of Support for Families With Children With Congenital Heart Defects

Elisabeth Bruce1, Karin Sundin1

  • 11 Umeå University, Örnsköldsvik, Sweden.

The purpose of this study was to illuminate pediatric nurses' (PNs) perceptions of support for families with a child with a congenital heart defect. The study used a qualitative design with narrative interviews with eight PNs in Northern Sweden, and the interview data were analyzed with content analysis. The analysis revealed that the nurses perceive that letting the parents be involved in their child's care is of great importance in supporting the families. Although they have a paternalistic attitude to the families, they also stated that nurses should inform the parents about the care of the child, create a good relationship with the family, and build trust among all parties involved.

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