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Impact of end-stage renal disease in children on their parents

Hee Sun Baek1, Ki-Soo Park2, Il Soo Ha3

  • 1Department of Pediatrics, Kyungpook National University Hospital, Daegu, Korea.

Nephrology (Carlton, Vic.)
|June 15, 2017
PubMed

Insights

Pediatric end-stage renal disease (ESRD) significantly impacts families, with lower quality of life scores for children on hemodialysis. Family impact is linked to patient QOL, highlighting the need for supportive interventions.

Area of Science:

  • Pediatric Nephrology
  • Quality of Life Research
  • Family Studies

Background:

  • End-stage renal disease (ESRD) in children presents unique challenges for patients and their families.
  • Assessing the family's experience is crucial for understanding the holistic impact of pediatric ESRD.
  • The PedsQL Family Impact Module (FIM) and PedsQL 3.0 ESRD module are tools for evaluating family and patient well-being.

Purpose of the Study:

  • To investigate the impact of pediatric ESRD on families using the PedsQL FIM.
  • To examine the relationship between family impact and the quality of life (QOL) of pediatric ESRD patients.
  • To compare family impact across different treatment modalities for pediatric ESRD.

Main Methods:

  • A cross-sectional study was conducted with 79 pediatric ESRD patients (47 dialysis, 32 transplant).
  • Korean translations of the PedsQL FIM and PedsQL 3.0 ESRD module were utilized.
  • Data were analyzed considering treatment modality, mother's age, duration of ESRD, and comorbidities.

Main Results:

  • Family Impact Module (FIM) scores were significantly lower for children undergoing hemodialysis (HD) compared to peritoneal dialysis (PD) or renal transplant.
  • Mothers' age, duration since ESRD diagnosis, and presence of comorbidity significantly affected FIM scores.
  • A significant correlation was found between total FIM scores and pediatric patient QOL scores, regardless of reporting method (parent-proxy or child-self).

Conclusions:

  • The PedsQL FIM is a valuable tool for assessing family impact in pediatric ESRD.
  • Findings underscore the link between family well-being and patient QOL in pediatric ESRD.
  • Further prospective research on parent and caregiver QOL is recommended to enhance clinical outcomes for pediatric ESRD patients.
Abstract

Keywords:
childrenend stage renal diseasefamilyparentsquality of life

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