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Sudden Death in Epilepsy: Knowledge among Pediatric Providers.
Madison M Berl1, Howard P Goodkin2, Barbara L Kroner3
1Center for Neuroscience, Children's National Health System, Washington, DC; Departments of Psychiatry and Behavioral Sciences and Pediatrics, George Washington University, Washington, DC.
The Journal of Pediatrics
|June 21, 2017
Summary
Most pediatric care providers (PCPs) are unaware of the risk of sudden unexpected death in epilepsy (SUDEP) in children. Educating PCPs is crucial to inform families about this serious epilepsy risk.
Area of Science:
- Pediatrics
- Neurology
- Public Health
Background:
- Sudden unexpected death in epilepsy (SUDEP) is a significant risk for children with epilepsy.
- Pediatric care providers (PCPs) play a vital role in patient and family education.
- There is a potential gap in PCP knowledge regarding SUDEP risks.
Purpose of the Study:
- To assess the awareness of SUDEP among pediatric care providers (PCPs).
- To identify the extent of the knowledge gap concerning SUDEP in pediatric epilepsy care.
- To highlight the need for improved SUDEP education for PCPs.
Main Methods:
- A survey was conducted among 146 pediatric care providers (PCPs).
- The survey assessed provider awareness of SUDEP risks in children with epilepsy.
- Data analysis focused on the percentage of unaware PCPs.
Main Results:
- A significant majority (75.3%) of surveyed PCPs were unaware of SUDEP risks in children with epilepsy.
- PCPs often assume neurologists are informing families about SUDEP.
- This indicates a critical gap in communication and education.
Conclusions:
- There is a substantial lack of awareness regarding SUDEP among PCPs.
- Addressing this knowledge gap is essential for improving family counseling and care.
- Enhanced education for PCPs on SUDEP can mitigate risks and improve outcomes for children with epilepsy.
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