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Related Concept Videos

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Continuing Care

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Related Experiment Video

Updated: Feb 27, 2026

Imaging Features of Systemic Sclerosis-Associated Interstitial Lung Disease
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Palliative care and interstitial lung disease.

Sabrina Bajwah1, Janelle Yorke

  • 1aCicely Saunders Institute, King's College London and King's College NHS Foundation Trust bSchool of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK.

Current Opinion in Supportive and Palliative Care
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Summary

Palliative care is crucial for individuals with interstitial lung disease (ILD). Best supportive care, focusing on symptom management and quality of life, is recommended for progressive ILD.

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Area of Science:

  • Pulmonary Medicine
  • Palliative Care
  • Interstitial Lung Disease (ILD)

Background:

  • National Institute for Health and Care Excellence highlights palliative care needs in ILD.
  • Progressive ILD necessitates best supportive care for symptom control and quality of life.
  • Evidence-based approaches are encouraged for managing ILD symptoms.

Purpose of the Study:

  • To review the palliative care needs of people with interstitial lung disease (ILD).
  • To emphasize the importance of best supportive care for improving symptom control and quality of life in progressive ILD.
  • To discuss evidence-based strategies for palliative care in ILD.

Main Methods:

  • Review of current literature and guidelines on palliative care for ILD.
  • Analysis of symptom burden and unmet needs in the ILD population.
  • Evaluation of existing outcome measures and recommendations for future research.

Main Results:

  • Increasing mortality from ILD, with more deaths occurring in hospitals.
  • Patients with ILD experience significant breathlessness, cough, and unmet physical/psychological needs.
  • Lack of validated outcome measures hinders research and intervention evaluation.
  • A new palliative care needs assessment tool is recommended for use in respiratory clinics.

Conclusions:

  • Further research is needed on pharmacological interventions (opioids, oxygen, neuromodulatory agents) for symptom management.
  • Interventions for breathlessness and case conferences are priorities for hospital-to-community transitions.
  • Development of validated ILD-specific patient-reported outcome measures is essential for robust intervention evaluation.