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Transition of care in patients with anorectal malformations: Consensus by the ARM-net consortium
Stefano Giuliani1, Caterina Grano2, Dalia Aminoff3
1Department of Specialist Neonatal and Pediatric Surgery, Great Ormond Street Hospital for Children, Great Ormond Street, WC1N 3JH London, United Kingdom.
Insights
This consensus standardizes Anorectal Malformations (ARM) patient care transition from pediatric to adult services. Early, structured follow-up with a multidisciplinary team is key for better long-term outcomes.
Area of Science:
- Pediatric Surgery
- Urology
- Gastroenterology
- Adolescent Medicine
Background:
- Anorectal Malformations (ARMs) require lifelong management.
- Transition from pediatric to adult care presents unique challenges for ARM patients.
- Standardized protocols are needed to ensure continuity of care.
Purpose of the Study:
- To establish the first consensus guidelines for managing Anorectal Malformations (ARMs) during the transition from childhood to adulthood.
- To define essential domains and key recommendations for effective patient transition.
Main Methods:
- A literature review was conducted by a task force of experts.
- Multiple meetings were held to identify critical aspects of care transition.
- Recommendations were finalized through consensus with the ARM-net consortium.
Main Results:
- Seven essential domains for an effective transition process were identified.
- Key recommendations were developed within each domain for ARM patients.
- Practical guidance was established for managing patients during transition.
Conclusions:
- Transition of care for Anorectal Malformations should commence early.
- Regular, structured follow-up is crucial for successful transition.
- Multidisciplinary collaboration is vital to prepare patients and reduce long-term morbidity.
Objectives:
To develop the first consensus to standardize the management of patients with Anorectal Malformations (ARMs) transitioning from childhood to adulthood.
Methods:
A dedicated task force of experts performed an extensive literature review and multiple meetings to define the most important aspects of transition of care. The findings were discussed with all ARM-net consortium members and a set of practical recommendations agreed upon at the annual meeting in 2016.
Result:
We defined seven domains that are essential to provide an effective and practical transition process. Within each domain we have developed a set of key recommendations that are important to be considered for ARM patients entering the age of transition.
Conclusions:
It is crucial that transition begins at an early age with regular and well-structured follow-up. Cooperation with a selected multidisciplinary team of pediatric and adult practitioners is required to prepare patients and families for effective transition to adult care and to reduce long term morbidity.
Type Of Study:
Review/Consensus paper.
Level Of Evidence:
III.
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