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Nicholas Medforth1, Elaine Huntingdon1

  • 1a School of Nursing and Allied Health, Faculty of Education , Health and Community, Liverpool John Moores University , Liverpool , United Kingdom.

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Summary

Transitioning young people with disabilities or long-term conditions to adult health services is complex. This study highlights key challenges and messages from families to improve support and service development.

Keywords:
Disabilitylong-term conditionmental healthtransitionyoung people

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Area of Science:

  • Healthcare Management
  • Pediatric to Adult Transition
  • Disability Services

Background:

  • Policy directives emphasize planned support for youth transitioning to adulthood and adult health services.
  • Young people with disabilities, long-term conditions, or mental health issues face unique challenges during service transitions due to differing expectations and cultures.
  • The transition process is complex and multi-dimensional, requiring coordinated care.

Purpose of the Study:

  • To explore the experiences of young people transitioning to adult health and care services.
  • To identify challenges faced by young people, parents, and carers during this transition.
  • To gather key messages from families to inform strategic service development and practice.

Main Methods:

  • Utilized 6 case studies of young people recently transitioned to adult health and care services.
  • Triangulated perspectives from young people, parents/carers, and involved professionals.
  • Analyzed emerging themes from case study data.

Main Results:

  • Identified significant challenges young people encounter when moving from pediatric to adult healthcare settings.
  • Highlighted differences in expectations, delivery, and culture between child and adult services.
  • One case study provided an in-depth illustration of experienced transition challenges.

Conclusions:

  • The transition to adult health services for young people with long-term conditions and disabilities requires significant attention and strategic planning.
  • Family perspectives offer crucial insights for improving service design and practice.
  • Coordinated and well-planned support is essential for a successful transition journey.