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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Engaging end-users in intervention research study design.

Molly A Martin1, Valerie G Press2, Kim Erwin3

  • 1a Department of Pediatrics , University of Illinois at Chicago , Chicago , IL , USA.

The Journal of Asthma : Official Journal of the Association for the Care of Asthma
|July 13, 2017
PubMed
Summary
This summary is machine-generated.

Engaging end-users in asthma research design improved trial feasibility. Modifying discharge education timing and delivery enhanced asthma intervention plans for children in emergency departments.

Keywords:
Asthmabehavioral randomized controlled trialemergency departmenthealth disparitiespediatric

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Area of Science:

  • Implementation Science
  • Pediatric Asthma Research
  • Health Services Research

Background:

  • Childhood asthma is a significant public health concern, particularly for high-risk populations in urban settings.
  • The Coordinated Healthcare Interventions for Childhood Asthma Gaps in Outcomes (CHICAGO) Plan trial aims to evaluate asthma interventions for children presenting to emergency departments (EDs).
  • A formative evaluation was conducted to gather end-user input for optimizing trial design and outcome measures.

Purpose of the Study:

  • To incorporate end-user feedback into the design of a pragmatic trial for childhood asthma interventions.
  • To enhance the feasibility and relevance of the CHICAGO Plan trial through formative evaluation.
  • To identify and address potential challenges in study implementation and recruitment.

Main Methods:

  • Employed a multi-level data gathering framework combining design principles and qualitative methods.
  • Conducted focus groups with Community Health Workers and caregivers, in-home interviews with caregivers, and key informant interviews at clinical sites.
  • Included direct observation through ED tours and site visits.

Main Results:

  • Identified that ED discharge protocols often deliver patient education at inopportune times, reducing family receptiveness.
  • Recommended and implemented modifications to the trial design, including repositioning discharge asthma plan education to earlier "teachable moments."
  • Reassigned the delivery of asthma discharge plans to study-employed ED coordinators to improve effectiveness.

Conclusions:

  • End-user engagement in the design phase of implementation research is crucial for enhancing research feasibility and relevance.
  • Tailoring intervention delivery to optimal "teachable moments" can improve patient education and engagement.
  • Addressing practical implementation challenges proactively through formative evaluation leads to more effective research designs.