[Systemic sclerosis and occupational difficulties: Results of a prospective study]

Area of Science:

• Rheumatology
• Occupational Health

Background:

• Systemic sclerosis (ScS) affects a notable population in France, frequently leading to work-related challenges.
• Understanding the prevalence and nature of professional difficulties (DP) in ScS patients is crucial for targeted interventions.

Purpose of the Study:

• To evaluate the frequency of professional difficulties in French scleroderma patients.
• To identify specific professional difficulties, associated symptoms, and existing coping strategies.
• To assess the utilization of available support systems and occupational physician (MT) engagement.

Main Methods:

• A cross-sectional study utilizing a heteroquestionnaire administered to 104 scleroderma patients at Lille University Hospital.
• Data validation against the National Observatory of scleroderma patients' clinical database.
• Analysis of professional difficulties, symptom impact on work, efficiency, and job loss.

Main Results:

• Over 62% of ScS patients reported professional difficulties, with 55% experiencing symptom exacerbation at work.
• Asthenia, Raynaud syndrome, arthralgias, and finger ulcerations were primary symptoms causing DP.
• Job retention aids were under-utilized; only 40% contacted disability services and 45% informed their occupational physician, often due to lack of awareness.

Conclusions:

• Systemic sclerosis poses significant challenges to employment and income.
• Lack of knowledge regarding available support and the role of occupational physicians hinders job retention.
• Improving awareness and integration of symptom management into workplace strategies is essential for ScS patient employment.