On status epilepticus and pins: A systematic content analysis.

Area of Science:

• Neurology
• Medical Informatics
• Social Media Analysis

Background:

• Status epilepticus (SE) is a critical neurological emergency with significant morbidity and mortality.
• The internet, particularly Web 2.0 platforms, is a primary source for health information.
• Pinterest is a visual social networking site with potential for health-related content dissemination.

Purpose of the Study:

• To qualitatively analyze Pinterest content related to status epilepticus (SE).
• To assess the representation of SE causes, symptoms, diagnosis, treatment, and prognosis on Pinterest.
• To evaluate the target audience and advocacy potential of SE-related pins on Pinterest.

Main Methods:

• A keyword search for "SE" was conducted on Pinterest, yielding 192 pins.
• Extracted pins were analyzed for content related to SE causes, symptoms, diagnosis, treatment, prognosis, and intended audience.
• Fifty-five pins met the inclusion criteria for detailed analysis.

Main Results:

• 56.4% of pins discussed SE causes (e.g., remote brain injuries), 54.5% covered symptoms, and 45.5% addressed diagnosis.
• Treatment (72.7%) and prognosis (40.0%) were frequently discussed topics.
• Content primarily targeted physicians (50.9%) and students (30.9%), with limited patient-centered advocacy (12.7%).

Conclusions:

• Pinterest contains substantial information on SE but is underused for patient advocacy and fundraising.
• Healthcare professionals and stakeholders should leverage Pinterest to increase awareness of SE and promote support initiatives.
• Optimizing Pinterest for advocacy could enhance public understanding and support for managing this life-threatening condition.