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Related Experiment Videos

"Please amputate my child's arms".

Mary Devereaux, Dennis John Kuo

    The Hastings Center Report
    |July 28, 2017
    PubMed
    Summary

    A young child with complete bilateral brachial plexus injuries requested arm amputation due to non-functional limbs. Medical teams disagreed, citing lack of medical benefit and ethical concerns, requesting an ethics consultation.

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    Area of Science:

    • Pediatric Orthopedics
    • Neuroscience
    • Medical Ethics

    Background:

    • A child sustained severe bilateral brachial plexus injuries in a motor vehicle accident before age three.
    • These injuries resulted in complete flail and insensate upper extremities, with no motor or sensory function.

    Observation:

    • Despite extensive physical therapy, no improvement in arm function was observed.
    • The child experienced frequent falls and injuries, with parents attributing this to the weight and obstruction of the non-functional arms.
    • Parents requested bilateral upper-extremity amputation for the child.

    Findings:

    • The orthopedic team disagreed that amputation offered medical benefit.
    • Ethical distress arose due to parental insistence on amputation for a young child with severe, non-functional limb loss.
    • An ethics consultation was requested to address the complex situation.

    Implications:

    • This case highlights the ethical challenges in pediatric medicine when parental desires conflict with medical recommendations.
    • It underscores the importance of multidisciplinary team evaluations and ethics consultations in complex pediatric cases.
    • The case raises questions about quality of life, parental autonomy, and the definition of medical benefit in pediatric limb conditions.

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