[INTERNATIONAL COOPERATION IN PEDIATRIC RHEUMATOLOGY: THE SHARE PROJECT]

Area of Science:

• Pediatric Rheumatology
• Clinical Care Improvement
• International Healthcare Collaboration

Background:

• The SHARE initiative, launched by the European Society of Pediatric Rheumatology, aimed to enhance clinical care in pediatric rheumatology.
• It involved extensive surveys and mapping of pediatric rheumatology centers across countries to assess resources and treatment quality.

Purpose of the Study:

• To improve the diagnosis and treatment of rheumatic diseases in children.
• To establish optimal clinical approaches and care standards.
• To foster international research and collaboration in pediatric rheumatology.

Main Methods:

• Conducting comprehensive surveys of pediatric rheumatology centers, including staff, treatments, and quality.
• Mapping resources and identifying best practices for pediatric rheumatic disease management.
• Developing position papers with evidence-based recommendations and guidelines.

Main Results:

• Identification of optimal clinical approaches and care standards for pediatric rheumatic diseases.
• Establishment of recommendations for enhancing international research, including genetic studies and sample sharing.
• Increased availability of patient information and development of educational programs for healthcare professionals.

Conclusions:

• The SHARE initiative successfully improved pediatric rheumatology care through standardized approaches and resource optimization.
• It laid the groundwork for enhanced international research collaboration and knowledge sharing.
• The project promoted higher and more uniform academic standards in pediatric rheumatology globally.