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International Children's Palliative Care Network: A Global Action Network for Children With Life-Limiting Conditions
Joan Marston1, Sue Boucher2, Julia Downing3
1International Children's Palliative Care Network, Bloemfontein, South Africa.
Insights
The International Children's Palliative Care Network (ICPCN) addresses global gaps in pediatric palliative care. ICPCN collaborates worldwide to ensure all children with life-limiting conditions receive quality care.
Area of Science:
- Global Health
- Pediatric Palliative Care
- Non-profit Health Organizations
Background:
- An estimated 21 million children worldwide require palliative care.
- Significant gaps exist in service provision for pediatric palliative care.
- The need for global collaboration, networking, and resource sharing was identified.
Purpose of the Study:
- To describe the establishment and evolution of the International Children's Palliative Care Network (ICPCN).
- To outline ICPCN's key focus areas and activities.
- To highlight ICPCN's role in advancing global pediatric palliative care.
Main Methods:
- Historical review of the ICPCN's inception and development since 2005.
- Description of ICPCN's collaborative efforts and global membership.
- Analysis of activities within ICPCN's five key focus areas: Communication, Advocacy, Research, Education, and Strategic Development.
Main Results:
- The ICPCN was established in 2005 and has grown into an established global network.
- ICPCN operates through five interconnected focus areas: Communication, Advocacy, Research, Education, and Strategic Development.
- ICPCN is the sole international charity dedicated to the rights and palliative care needs of children globally.
Conclusions:
- The ICPCN has been instrumental in the advancement of pediatric palliative care worldwide.
- The organization is committed to ensuring universal access to quality palliative care for children.
- Continued global collaboration and strategic development are essential for expanding reach and impact.
Abstract:
The International Children's Palliative Care Network (ICPCN) is a global network of individuals and organizations working together to reach the estimated 21 million children with life-limiting conditions and life-threatening illnesses. The drive to establish the ICPCN was born from the recognition of the gaps in service provision for children's palliative care and the need to collaborate, network, and share resources. Established in 2005 during a meeting in Seoul, South Korea, the ICPCN has developed over the years into an established network with a global membership. The history of the organization is described, including some of the key events since its inception. Working in collaboration with others, ICPCN has five key focus areas: Communication; Advocacy; Research; Education; and Strategic development, and is the only international charity working globally for the rights of children with palliative care needs. Activities in these areas are discussed, along with the inter-connection between the five areas. Without the ICPCN, palliative care for children would not have developed as far as it has over the years and the organization is committed to ongoing work in this area until all children requiring palliative care have access to quality services, wherever they live around the world.
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