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Nurse Practitioner Lead Pediatric Baclofen Pump Program: Impact on Safety and Quality of Care
Kristin Buxton1, Ann Morgan, Jayne Rogers
1Ann Morgan, MS RN CPNP, is Nurse Practitioner, Baclofen Pump Program, Boston Children's Hospital, Boston, MA. Jayne Rogers, MSN RN NEA-BC CPHQ, is Nursing Director, Inpatient Medicine Services, Boston Children's Hospital, Boston, MA.
Insights
Intrathecal baclofen (ITB) therapy manages spasticity in children with cerebral palsy. A dedicated nurse practitioner-led program significantly enhances patient safety and care quality for ITB therapy management.
Area of Science:
- Neurology
- Pediatrics
- Rehabilitation Medicine
Background:
- Children with cerebral palsy often suffer from debilitating spasticity, leading to pain and contractures.
- Intrathecal baclofen (ITB) therapy offers relief but carries risks, including life-threatening withdrawal from abrupt discontinuation.
- Regular system maintenance and patient support are crucial for safe ITB therapy.
Purpose of the Study:
- To describe the development and impact of a nurse practitioner-led program for managing intrathecal baclofen therapy in pediatric patients.
- To highlight the essential role of the nurse practitioner in ensuring the safety and quality of care for patients on ITB therapy.
Main Methods:
- Development of a specialized program with a nurse practitioner (NP) leader to manage ITB therapy.
- Implementation of comprehensive patient and family education programs.
- Establishment of quality and safety initiatives led by the NP.
- Leveraging the NP's close patient relationships and clinical knowledge for proactive issue identification.
Main Results:
- The NP's role evolved to become essential for the safe and effective management of ITB pumps.
- The program successfully integrated outpatient and inpatient management of baclofen pumps.
- Enhanced patient and family education improved understanding and adherence to therapy.
- The NP's unique position facilitated early detection and management of potential ITB-related concerns.
- Significant improvements in the overall safety and quality of care for patients receiving ITB therapy were observed.
Conclusions:
- A dedicated nurse practitioner-led program is vital for optimizing safety and care quality in pediatric ITB therapy.
- The NP's expertise and patient relationships are key assets in managing complex ITB therapy and mitigating risks.
- This model of care enhances patient outcomes and institutional safety for intrathecal baclofen treatment.
Abstract:
Children with cerebral palsy experience spasticity that can be debilitating and cause significant pain and contractures. Intrathecal baclofen (ITB) therapy can help relieve this spasticity and improve the quality of life for these patients, but it comes with risk. Withdrawal from the medication in case of abrupt discontinuation of delivery can be life-threatening. Regular maintenance of the system is mandatory. Having a program in place to manage the device and support patients helps to ensure their safety. Toward this end, we developed a program with a nurse practitioner (NP) leader to secure the safety and quality of care for patients using ITB therapy. As the program grew, the NP role as an expert in the care and management of ITB pumps became essential to the safety and care of these patients. In addition to the basic outpatient and inpatient management of the baclofen pump, the NP developed a detailed educational program for the patients and leads the quality and safety initiative for the program. The NP is also in a unique position to have intimate knowledge of the patient's condition and build a strong relationship with the patient/family. The NP is able to use this knowledge and relationship as concerns arise that could be related to the ITB therapy. This has greatly improved the safety and quality of care for patients using ITB therapy at our institution.
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