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[Optimistic perspectives in communicating difficult news on fetal development]
Ana Cristina Ostermann1, Minéia Frezza1, Rafael Machado Rosa2
1Universidade do Vale do Rio dos Sinos, São Leopoldo, Brasil.
Cadernos De Saude Publica
|August 24, 2017
Summary
Communicating difficult diagnostic news in genetic counseling involves scaling optimistic perspectives based on fetal syndrome severity. Patients receive recommendations, even with negative diagnoses, ensuring a supportive conclusion to genetic counseling sessions.
Area of Science:
- Medical Genetics
- Communication in Healthcare
- Sociology of Health
Background:
- Communicating diagnostic news is challenging in healthcare but underrepresented in clinical training.
- Genetic counseling for fetal syndromes requires sensitive delivery of difficult information.
Purpose of the Study:
- To describe and evaluate strategies for softening difficult news during genetic counseling for fetal syndromes.
- To analyze real-world interactions in clinical genetics to improve physician-patient communication.
Main Methods:
- Analysis of 33 naturalistic genetic counseling sessions involving pregnant women.
- Utilized Conversation Analysis with an ethnomethodological approach.
- Data from a reference hospital in the Brazilian Unified National Health System (SUS).
Main Results:
- Difficult news delivery is often paired with situationally-scaled optimistic perspectives.
- Even without a positive diagnosis, sessions conclude with recommendations, such as palliative care.
- Patients consistently leave appointments with actionable recommendations.
Conclusions:
- Strategies exist to mitigate the impact of difficult news in genetic counseling.
- Real-world interaction analysis provides evidence-based support for training healthcare professionals.
- This study enhances understanding of physician-patient communication in Brazilian genetic services.
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