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Related Experiment Video

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Insertion, Maintenance, and Removal of the Percutaneous Dual Lumen Cannula Right Ventricular Assist Device

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Published on: July 20, 2022

'Being' a ventricular assist device recipient: A liminal existence.

Holly C Standing¹, Tim Rapley¹, Guy A MacGowan²

¹Institute of Health and Society, Newcastle University, Newcastle Upon Tyne, NE2 4AX, United Kingdom.

Social Science & Medicine (1982)

|September 2, 2017

Summary

Living with a ventricular assist device (VAD) involves a liminal existence, impacting identity and time perception. Understanding these experiences is crucial as VADs become more common in heart failure management.

Keywords:

Heart failure Heart transplantation Liminality Phenomenology United Kingdom Ventricular assist device

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Area of Science:

Cardiology
Medical Sociology
Psychology

Background:

Ventricular assist devices (VADs) are mechanical circulatory support systems increasingly used for heart failure.
Their application is expanding beyond heart transplant waiting lists, necessitating research into patient experiences.
Current literature lacks depth on the daily realities of VAD recipients.

Purpose of the Study:

To explore the lived experience of individuals with VADs.
To understand the phenomenon of 'Being' a VAD recipient.
To identify the challenges and perceptions associated with long-term VAD use.

Main Methods:

Interpretive phenomenological approach.
Semi-structured interviews with 20 VAD recipients in the UK.
Thematic analysis to identify overarching experiences.

Main Results:

Life with a VAD is characterized by a 'liminal existence'.
Key themes include loss of identity due to device limitations, altered sense of time (inauthentic temporality), and the VAD's perceived temporary nature.
Recipients project towards a future beyond this liminal state.

Conclusions:

VAD recipients experience a profound state of transition and uncertainty.
The psychological and social impact of VADs requires further attention.
Future research should address long-term adaptation and the potential for a non-liminal future for VAD users.