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Published on: May 31, 2024
A Discourse Analysis: One Caregiver's Voice in End-of-Life Care.
Erin Kitt-Lewis1, Susan Strauss1, Janice Penrod1
11 The Pennsylvania State University, University Park, Pennsylvania, USA.
This study used discourse analysis to examine one informal family caregiver's shifting perceptions of self and other during end-of-life care. Understanding the caregiver experience is crucial for supporting the growing need for caregiving.
Area of Science:
- Gerontology
- Sociology
- Health Services Research
Background:
- Informal family caregivers are vital to the U.S. healthcare system.
- The demand for family caregivers is projected to increase.
- Understanding caregiver experiences is essential for workforce support.
Purpose of the Study:
- To conduct an in-depth discourse analytic examination of end-of-life caregiving.
- To reveal shifting stances and perceptions of a single caregiver.
- To explore caregiver perceptions of self and care recipient.
Main Methods:
- Discourse analysis of 13 hours of caregiver interview data.
- Focus on the end-of-life caregiving experience.
- Isolation of specific reference terms to analyze perceptions.
Main Results:
- Revealed multiplicity of shifting stances and perceptions of one caregiver.
- Provided systematic insights into the caregiver's mind and perceptions.
- Examined the caregiver's role in relation to his terminally ill wife.
Conclusions:
- Discourse analysis is a viable method for analyzing textual caregiver data.
- Deeper insights into the caregiver experience are needed.
- This study offers a model for understanding individual caregiver journeys.
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