Instrument to assess educational programs for parents of children with congenital heart disease undergoing cardiac surgery
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Published on: February 10, 2022
Paola Pino Armijo1,2, Muriel Ramírez León3, Cristian Clavería Rodríguez4
1Área Materno Infantil, Subdirección de Enfermería, Hospital Clínico UC CHRISTUS, Santiago de Chile.
Insights
A new survey tool effectively assesses the relevance of educational programs for parents of children with congenital heart disease (CHD) undergoing cardiac surgery. Healthcare provider administration is recommended for optimal information gathering.
Area of Science:
- Pediatric Cardiology
- Health Education
- Patient Education
Background:
- Parents of children with congenital heart disease (CHD) require tailored educational programs.
- Assessing the relevance of current educational interventions is crucial for improving care.
- Existing tools may not adequately capture parental needs regarding education for children undergoing cardiac surgery.
Purpose of the Study:
- To design and validate a novel instrument for assessing the relevance of educational programs for parents of children with CHD.
- To evaluate the effectiveness of different aspects of educational delivery, including educator, timing, location, and content.
Main Methods:
- Instrument development based on Kaufman's model and literature review.
- Survey creation with closed-ended and open-ended questions, reviewed by experts.
- Administration of the survey to parents of children with CHD undergoing cardiac surgery prior to discharge.
Main Results:
- A validated instrument with 42 closed-ended and 5 open questions was developed.
- Significant agreement was found between received and desired education from cardiologists and in-person settings.
- Surveys administered by investigators showed higher completion rates than self-administered ones.
Conclusions:
- A validated instrument is now available to assess the relevance of educational programs for parents of children with CHD.
- Healthcare provider administration of the survey is recommended for enhanced data collection and understanding.
Objetive:
To design and validate an instrument to assess the relevance of educational programs for parents of children with congenital heart disease (CHD) undergoing cardiac surgery.
Material And Method:
In October 2011, an instrument was designed based on Kaufman's model and on the bibliography, and a survey was developed in the form of a checklist with 32 close-ended questions about received education and desired education, categorized into 5 items: educator, time, place, means, and content. The survey was reviewed by 4 academic professionals and 9 experts in the care of children with CHD, and the checklist was extended to include 42 close-ended questions and 5 open questions. The instrument was administered on the day before discharge to the parents of children with CHD undergoing cardiac surgery at the Department of Pediatrics between February and August 2013. The survey was self-administered by the first participants and administered by the investigator among the remaining participants.
Results:
Fifty-five children met inclusion criteria; a total of 60 parents took part in the study. Agreement was observed between received education and desired education, which was statistically significant only in terms of education provided by a cardiologist (p= 0.000, K= 0.659) and in the hall (p= 0.000, K= 0.655). Statistically significant differences were observed between the 19 self-administered surveys and the 41 surveys administered by the investigator. Among the latter, a greater level of completion was observed for all items.
Conclusion:
A validated instrument was developed to assess the relevance of educational programs for parents of children with CHD undergoing cardiac surgery. This survey should be administered by a health care provider for a better understanding of information.
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