Sociocultural Considerations in Juvenile Arthritis: A Review

Kimberly A Lewis1, Sharon A Brown2, Stefano Tiziani3

  • 1Office of Nursing Research, Seton Healthcare Family, Austin, TX, USA.

Journal of Pediatric Nursing
|September 16, 2017
PubMed

Insights

Sociocultural factors significantly impact pediatric Juvenile Arthritis (JA) outcomes, with disparities affecting minority and low-income children. Addressing these determinants is crucial for improving care and health equity in JA management.

Area of Science:

  • Pediatric Rheumatology
  • Health Services Research
  • Sociology of Health

Background:

  • Juvenile Arthritis (JA) is a common childhood autoimmune disease.
  • Previous research explored sociocultural factors influencing JA patient outcomes.
  • A systematic synthesis of this research is lacking to inform clinical guidelines.

Purpose of the Study:

  • To systematically examine and synthesize research on sociocultural determinants of health in children with JA.
  • To identify gaps in the literature regarding health disparities and outcomes in pediatric JA.
  • To inform the development of evidence-based clinical guidelines and policies.

Main Methods:

  • Systematic review of peer-reviewed articles from five databases.
  • Inclusion criteria: English language, U.S./Canada studies, focus on health determinants, quality of life, socioeconomic status, or health disparities in children with JA.
  • Final sample: 16 articles representing 2139 children and 939 parents.

Main Results:

  • Studies covered medication compliance, electronic records, environmental risks, economic hardship, parental coping, and leisure activities.
  • Medicaid patients showed worse outcomes than privately insured patients, despite similar healthcare use.
  • Significant gaps identified in research on physical environment effects and alcohol use.

Conclusions:

  • Five key health determinant categories influence JA outcomes: biology, individual behaviors, social environment, physical environment, and health services.
  • Racial/ethnic minority children and those from low socioeconomic backgrounds experience persistent disparities.
  • Integrating sociocultural factors into care plans, research, and policies is essential to reduce barriers and improve outcomes for children with JA.
Abstract

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