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Is There Ever a Role for the Unilateral Do Not Attempt Resuscitation Order in Pediatric Care?
Jonathan M Marron1, Emma Jones2, Joanne Wolfe2
1Department of Medicine, Boston Children's Hospital, Boston, Massachusetts, USA; Department of Pediatric Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts, USA; Harvard Medical School, Boston, Massachusetts, USA; Office of Ethics, Boston Children's Hospital, Boston, Massachusetts, USA; Center for Bioethics, Harvard Medical School, Boston, Massachusetts, USA; Division of Population Sciences, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
Insights
Navigating end-of-life care for children involves complex decisions, especially when medical teams and parents disagree on interventions. This case study advocates for shared decision-making and open communication over unilateral do not attempt resuscitation orders in pediatric care.
Area of Science:
- Pediatric Palliative Care
- Medical Ethics
- Clinical Decision-Making
Background:
- End-of-life care for children presents significant ethical and clinical challenges.
- Disagreements between medical teams and families regarding interventions are complex.
- Rarely, medical teams may consider unilateral do not attempt resuscitation orders.
Abstract:
Care for children as they near the end of life is difficult and very complex. More difficult still are the decisions regarding what interventions are and are not indicated during these trying times. Occasionally, families of children who are nearing the end of life disagree with the assessment of the medical team regarding these interventions. In rare cases, the medical team can be moved to enact a do not attempt resuscitation order against the wishes of the patient's parents. This article presents one such illustrative case and discusses the ethical issues relevant to such challenging clinical scenarios. The authors posit that such a unilateral do not attempt resuscitation order is only appropriate in very limited circumstances in pediatric care. Instead, focus should be placed on open discussion between parents and members of the clinical team, shared decision making, and maintenance of the clinician-parent relationship while simultaneously supporting members of the clinical team who express discomfort with parental decisions. The authors propose an alternative framework for approaching such a conflict based on clinician-parent collaboration and open communication.
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