Related Experiment Video
Updated: Feb 22, 2026
A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS
Published on: February 21, 2011
Feasibility of a multidisciplinary caregiving training protocol for young caregivers in families with ALS
Melinda S Kavanaugh1, Megan Howard1, Lori Banker-Horner2
1a Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee , Milwaukee , WI , USA.
Abstract:
Feasibility of a multidisciplinary caregiving training protocol for young caregivers in families with ALS.
Objectives:
To assess the feasibility of a multidisciplinary young caregiver group training protocol for children and youth who provide care to a family member with ALS.
Method:
Peer group experiential young caregiver model based on theories of self-management and self-efficacy. Training conducted by a multidisciplinary team of therapists in ALS (PT, OT, Speech and social work), as well as assistive device vendors. Demographic data, caregiving tasks and evaluations were collected.
Results:
The model is feasible for both youth and therapists. Youth found benefit, skill acquisition, and mastery by asking questions, teaching back skills to the group and engaging with peers.
Conclusion:
This project demonstrates young caregivers will participate in training, and engage with "like" peer group. Future projects will focus on developing a structured survey and observation, testing efficacy in larger groups.
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