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From disability to ability: comprehensive rehabilitation providing a holistic functional improvement in a child with
1Department of Physical Medicine and Rehabilitation, All India Institute of Medical Sciences, Jodhpur, Rajasthan, India.
Insights
Neural Tube defects (NTDs) are common congenital disorders impacting children and families. Late-stage rehabilitation can still offer significant benefits, highlighting the need for accessible services in developing nations.
Area of Science:
- Pediatrics
- Neurology
- Rehabilitation Medicine
Background:
- Neural Tube defects (NTDs) represent a significant global burden of congenital disorders.
- These conditions present a wide spectrum of clinical manifestations and potential complications.
- NTDs profoundly affect a child's functional capacity, quality of life, and impose lifelong challenges on families.
Observation:
- This case study focuses on a 16-year-old individual with an NTD.
- The observation highlights the impact of late-stage initiation of rehabilitation services.
- Challenges in accessing rehabilitation services within developing countries are noted.
Findings:
- Rehabilitation, even when initiated later in life, can yield substantial functional improvements.
- The study underscores the potential for positive outcomes despite delayed intervention.
- The case illustrates the critical need for early and consistent access to rehabilitative care.
Implications:
- Timely and accessible rehabilitation services are crucial for maximizing functional outcomes in children with NTDs.
- Addressing barriers to healthcare access in developing countries is essential for equitable care.
- Expanding outreach programs can benefit neglected children with NTDs, improving their quality of life.
Abstract:
Neural Tube defects are one of the most common congenital disorders, presenting in a paediatric rehabilitation set-up. With its wide spectrum of clinical presentation and possible complications, the condition can significantly impact an individual's functional capacity and quality of life. The condition also affects the family of the child leaving them with a lifelong impairment to cope up with. Through this 16-year-old child, we shed light on the effects of providing rehabilitation, even at a later stage and its benefits. We also get a glimpse of difficulties in availing rehabilitation services in developing countries and the need to reach out many more neglected children like him with good functional abilities.
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