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Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum

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Published on: August 5, 2020

SUDEP, the aftermath: supporting the bereaved.

Lina Nashef¹, John Paul Leach²

¹Department of Neurology, King's College Hospital, London, UK.

Practical Neurology

|October 4, 2017

Summary

This summary is machine-generated.

Sudden unexpected death in epilepsy (SUDEP) bereaved families need better support. This paper proposes a physician-guided care pathway to help families cope with grief, guilt, and the trauma of unexpected loss.

Keywords:

aftermath bereavement epilepsy sudep

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Area of Science:

Neurology
Bereavement Studies
Medical Ethics

Background:

Sudden unexpected death in epilepsy (SUDEP) is a tragic event with profound impact on families.
Existing standards of care for supporting SUDEP bereaved families are limited.
Grief following SUDEP involves complex emotions like guilt, anger, blame, shock, and trauma.

Purpose of the Study:

To guide physicians in supporting families bereaved by SUDEP.
To propose a structured pathway for communication and care for bereaved families.
To address the lack of evidence-based guidelines in this area.

Main Methods:

Literature review on grief and bereavement support.
Development of a proposed care pathway for physicians.
Recommendations for communication strategies and ongoing support.

Main Results:

Limited evidence currently exists to guide SUDEP bereavement care.
A proposed pathway involves timely contact, ongoing support, and referrals.
Physician-led clarification and discussion can mitigate inappropriate guilt and blame.

Conclusions:

A structured approach to physician-led support is crucial for SUDEP bereaved families.
Timely and empathetic communication can aid families in processing their sudden loss.
Referral to specialized services can provide necessary ongoing support.