Polio survivors perceptions of a multi-disciplinary rehabilitation programme

Area of Science:

• Neurology
• Rehabilitation Medicine
• Public Health

Background:

• Post-polio syndrome (PPS) is a late complication of poliovirus infection, presenting complex management challenges due to extensive symptomatology.
• European and UK guidelines recommend rehabilitation programs for PPS, yet research on intervention effectiveness is limited.
• Understanding polio survivors' perspectives on rehabilitation is crucial for improving care.

Purpose of the Study:

• To explore polio survivors' perceptions of an in-patient, multi-disciplinary rehabilitation program.
• To identify factors influencing their experiences and the long-term benefits of rehabilitation.

Main Methods:

• Semi-structured interviews were conducted with community-dwelling polio survivors in the UK who had attended an in-patient rehabilitation program.
• Thematic analysis was employed to interpret the interview data.

Main Results:

• Participants reported positive experiences, valuing peer support and finding strategies like pacing and reflection beneficial for self-management.
• Experiences were shaped by past polio history and self-concept.
• Some participants continued to support others with PPS post-program completion.

Conclusions:

• In-patient rehabilitation programs provide long-term positive benefits for polio survivors.
• Patient expertise and lived experience should be central to rehabilitation program design and co-production.
• Rehabilitation should not be time-limited, and follow-up support is essential, with patient preferences evaluated in outcome measurement.