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Practical Considerations for Using Online Methods to Engage Patients in Guideline Development.

Sean Grant1, Glen S Hazlewood2, Holly L Peay3

  • 1Behavioral and Policy Sciences Department, RAND Corporation, 1776 Main Street, PO Box 2138, Santa Monica, CA, 90407-2138, USA. sgrant@rand.org.

The Patient
|October 15, 2017
PubMed
Summary

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This summary is machine-generated.

Online methods can enhance patient engagement in clinical practice guideline (CPG) development, improving recommendation diversity. Challenges exist but are outweighed by growing patient involvement and technology familiarity, making online tools practical for scalable CPG creation.

Area of Science:

  • Health Services Research
  • Medical Informatics
  • Patient Engagement

Background:

  • Clinical practice guidelines (CPGs) are crucial for healthcare policy and research.
  • Patient involvement in CPG development is increasing to ensure patient-centered recommendations.
  • Scalable methods are needed to engage diverse, geographically distributed patient groups.

Purpose of the Study:

  • To discuss practical considerations for using online methods to engage patients in CPG development.
  • To identify potential advantages and challenges of online patient engagement in this context.

Main Methods:

  • A rapid, systematic literature review on patient involvement in CPG development.
  • Qualitative evidence synthesis to analyze findings.

Related Experiment Videos

Main Results:

  • 79 articles were identified regarding patient involvement in CPG development.
  • Online methods may foster patient openness and reflect diverse views, enhancing CPG utility.
  • Potential challenges include resource needs and engaging specific populations.

Conclusions:

  • Online engagement offers scalable solutions for patient involvement in CPG development.
  • Growing acceptance of patient engagement and digital literacy mitigate challenges.
  • Further empirical examination of online methods across CPG development stages is warranted.