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Constructing a relevant decision aid for parents of children with bronchopulmonary dysplasia
Insights
A new visual decision aid effectively educates parents about bronchopulmonary dysplasia (BPD), improving their understanding and facilitating doctor communication. This tool enhances knowledge for both experienced and naive participants.
Area of Science:
- Neonatal Medicine
- Medical Education
- Health Communication
Background:
- Parental education for complex neonatal conditions like bronchopulmonary dysplasia (BPD) lacks standardization.
- Inadequate communication and understanding can negatively impact care for children with BPD.
Purpose of the Study:
- To develop and evaluate a decision aid for counseling parents of children with BPD.
- To improve parental understanding and facilitate communication regarding BPD.
Main Methods:
- Qualitative interviews with 33 neonatal clinicians and 12 parents identified key BPD education topics.
- A visual decision aid was created using these topics and tested in mock counseling sessions.
- Participant knowledge was assessed via pre- and post-tests, alongside an acceptability survey.
Main Results:
- The decision aid, featuring eight educational cards with visuals and statistics, was deemed appropriate and easy to understand.
- Significant knowledge increases were observed in both 'experienced' (P<0.0001) and 'naïve' (P=0.0064) participant groups.
- Participants reported improved knowledge about BPD after using the decision aid.
Conclusions:
- The developed decision aid shows promise in enhancing parental comprehension of BPD.
- This tool can potentially improve communication dynamics between parents and healthcare providers.
- Standardizing BPD education through decision aids may lead to better outcomes for affected children and their families.
Background:
To develop and test a decision aid for counseling parents of children with bronchopulmonary dysplasia (BPD).Local problem:Parental education about complex conditions is not standardized and communication and understanding may not be adequate.
Methods:
Semi-structured interviews were conducted with 33 neonatal clinicians and 12 parents of children with BPD using a qualitative research design. The interviews were used to identify education topics that were felt to be important in BPD education. These topics were then used to create a visual decision aid to be used in counseling sessions with parents. The decision aid was then used in mock counseling sessions with 15 'experienced' participants and 7 'naïve' participants to assess its efficacy. The participants completed a pre and post test to assess change in knowledge as well as an 11-question Likert style acceptability survey.
Intervention:
Implementation of a decision aid while educating parents about BPD.
Results:
Topics identified during the interviews were used to create eight educational cards which included pictures, pictographs and statistics. Overall, participants thought the decision aid contained an appropriate amount of information, were easy to understand and improved their knowledge about BPD. Testing demonstrated a significant increase in knowledge in both the 'experienced' (P<0.0001) and 'naïve' group (P=0.0064).
Conclusion:
A decision aid for parents of children with BPD may improve understanding of the condition and help facilitate communication between parents and doctors.
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