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The Care of Children With Congenital Heart Disease in Their Primary Medical Home

M Regina Lantin-Hermoso, Stuart Berger, Ami B Bhatt

    Pediatrics
    |November 1, 2017
    PubMed

    Insights

    Congenital heart disease (CHD) is a common birth defect requiring ongoing care. This guide helps primary care providers manage children with CHD throughout their lives.

    Area of Science:

    • Pediatrics
    • Cardiology
    • Public Health

    Background:

    • Congenital heart disease (CHD) is the most frequent anomaly present at birth.
    • Increased survival rates for CHD patients necessitate comprehensive, coordinated care.
    • Primary care providers (PCPs) and medical homes are crucial for managing complex CHD needs.

    Purpose of the Study:

    • To provide PCPs with guidelines for managing pediatric patients with CHD.
    • To outline anticipated challenges in the lifelong care of individuals with CHD.
    • To serve as a practical resource for current knowledge on CHD management.

    Main Methods:

    • Policy statement development.
    • Review of current medical knowledge and best practices.
    • Timeline-based approach to care management.

    Main Results:

    • Guidelines for PCP management of CHD patients are established.
    • Anticipated problems and considerations across life stages are identified.
    • A practical, accessible format for information dissemination is provided.

    Conclusions:

    • PCPs play a vital role in the long-term care coordination of patients with CHD.
    • A structured, timeline-based approach supports effective management of CHD.
    • This policy statement enhances the capacity of medical homes to care for individuals with CHD.

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